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Friday, June 1, 2012

Meagan got her new power chair!!!!!

I have the best support group that helps me with my daughter. Sharon her physical therapist is the best in the world. I cannot thank her enough. She has been with my daughter since the start of this school year and she has managed to get Meagan: a new manual chair, bath lift, and power chair. I am so happy for my daughter. You should have seen her showing off her mad skills driving around the track at school. She was adorable, I haven't been this happy in a really long time. At least for that brief moment. She put her chair in the fastest mode and cruised around the track passing everyone, it was awesome. She was cruising and squealing the whole way around the track. I have never seen something so precious in my life. I never new love could be so heavy.

Meagan's infection has not changed much, but it has not gotten worse. She is starting to get her appetite back and the swelling is almost gone, but she has been getting sick when she takes her mid-day dose of meds. We have been trying feeding her and spacing it out a little bit more, so hopefully my poor couch doesn't come victim to more up-chuck.

Meagan has found You-Tube and is really addicted to Annoying orange. Its really funny and she has to watch it constantly. I love to see her happy, so as long as he doesn't keep getting his head cut off and making her cry, I am cool with it. I wish they had parental features for You-tube.  She manages to find all sorts of videos. One night I look over at her and she has silent tears running down her cute lil-cheeks and so I look at what she is watching. It turns out she found a story about these conjoined twins, and they die. She totally understood what it was that was happening and was crying. It was really sad. But now she has to watch it all the time. I have tried deleting the video and she still can find it. She is too smart for her own good.

My husband and I have finally agreed that we are going to have another child, even if we have another child that is special needs. I have a hole in my heart and it needs to be filled. Strange. I never thought I would say those words after having Meagan, but I want her to have a sibling and it better be a boy. I know we will get what we get, but I want a boy. I have a few hurdles before I can get pregnant, but by next year we plan to start trying to get pregnant, SCARY.

To add to my extra lovely month, my unemployment ran out and that really sucks. I was told I had until December 31, 2012 before it ran out, but no it done. So now I have to put my schooling on hold and get a job. Maybe I can do both, I really hope so. I want to get my degree and provide a better life for myself and my family. We shall see.